Friday, February 08, 2008

7 For 7: 7 Ways You Can Help!

Now that we have some people interested in this site and in creating CHD awareness, I'm getting lots of questions on how to help the campaign for awareness, where to make donations, and what else can be done. For today's list of 7, here are some suggestions of how you can help.

Give Blood.
Before, during and after surgery, our children have multiple transfusions. Sometimes these can come from family members, but many times, if the surgery is not pre-planned, this blood comes from strangers like you. Your gift of blood goes a LONG way for a child with CHD!

Vote on Health Care Issues. In future blog entries, we'll start to delve into the problems that our current health care systems leave families of CHD facing - things like bankruptcy, suggestions for divorce (to qualify for aid), unsurmountable medical bills and general agitation and frustration over the hours that must be spent fighting first for our children's lives, then for the insurance to cover the costs. Don't worry, we'll offer some loopholes and promising information we've found as well. When you see a bill come through that promotes options for "uninsurable" patients (as many CHD patients have been deemed), VOTE, contact your legislator and talk to your community about it.

Support your local group. There are a large number of CHD-related groups out there, each offering services to families... from support to financial aid, medical guidance to research. We have not yet been able to verify the best source to donate funds directly to research of CHD, so I instead encourage you to participate in a fundraiser for a group in your community, such as local chapters of Mended Little Hearts or Its My Heart, make a donation and get involved.

Become an organ donor.
Today I read wonderful, yet heart-breaking news that a little girl received her much-needed heart transplant this morning. She had been on the waiting list for over 60 days, and is just over 9 lbs. Through someone else's tragedy, her life has been saved. It's hard to even fathom, but the donation of you or your loved ones body can save one or more lives.

Advocate. You're likely reading this because you, a friend, or a loved one has been affected by CHD. If so, get out there and talk about it. Talk to your doctors, OBs, ultrasound technicians, social workers - anyone who may come across CHD. It's surprising how little they know

Join Forces. If you already belong to a CHD-related group, encourage them to join in first on the Awareness Week campaign, but secondly in finding ways to unite our community. We need to find a common ground that all of our groups can participate in - a way to advocate to the masses and find new sources of revenue for research. Whether it's through an existing organization (I don't know which one to point to at this point, sorry!) or something we need to create, a concerted effort is beyond overdue and necessary.

Support a CHD Family.
If you are a friend or loved one of someone who has CHD, simply being a listening ear, taking over meals during the "trying times," sending messages of support, prayers and positive energy all make big differences to a family with CHD. Offer to assist with child care for siblings, to stay and let the parents rest, to mow the lawn, to clean the house, to work overtime so they can have more time off, whatever will assist them. Most won't come out and say they need help, but we all enjoy the help we do receive.

Thursday, February 07, 2008

7 For 7: CHD Faces I Love to See!

Today is the first, official day of CHD Awareness Week. This week's blog entries will each feature lists of 7s relating to CHD. We hope you will enjoy it, maybe learn something new and pass it on! Quite a few friends are participating in this effort, and we want to thank them in advance for their stories, photos, shared memories and other information.

This challenge has been more time-consuming than I imagined, so I will be posting these entries this week on both my personal and the LearnAboutCHD blog. Sorry for the cross-posting in advance!

Today's entry features 7 beautiful people who have broken, mending or mended hearts as a result of CHD. Each has a unique story and has faced many challenges of CHD. Some have more challenges to face. No two have the same results from CHD, but all have the same common goal - making the most of the heart they have been given!

Jameson is a 16 month old with Hypoplastic Left Heart Syndrome. She is a loving and happy toddler, full of hugs and kisses, and an absolute joy to be around. Her first open heart surgery took place when she was 4 days old, and her second at 4 ½ months. After her second surgery, Jameson began to grow stronger every day. Lately, though, she sometimes gets easily winded when she is cruising around, and her stats are chronically lower than normal. Other than that, the scar that is hidden under her shirt is the only proof of what this little girl has been through. Her third surgery (the Fontan) will be in April.


Lauren was diagnosed with Tetralogy of Fallot at birth. Her parents were told that she probably wouldn't make it and I was taken by ambulance to UNC Chapel Hill where I had open heart surgery at a week old. There they performed a temporary repair that lasted until she was 17. Lauren then had another surgery to close up the shunt and perform a homograph pulmonary valve replacement. Her family and friends have always been very supportive and treated her as an equal to her sister, who has a healthy heart. She now is the co-coordinator of Mended Little Hearts in Central Virginia, and is grateful to have been given the opportunity to live and help others. At age 36, there is always a probability that she will have to have another surgery, but for now she is able to do anything I want to do (except be a flight attendant - she's not tall enough!).

Gabe was born in July 2006 and surprised his family with the news that along with a full head of hair, he also had a broken heart. He was diagnosed with D-Transposition of the Great Arteries, minimal Pulmonary Stenosis, and a bicuspid valve. He has undergone two open heart surgeries to repair his heart, and now has pulmonary stenosis due to the nature of his second repair. His family has high hopes that he will outgrow it and that if any intervention is needed, it will be in the cath lab. His mom says he disobeys her with glee, and is a "blur these days... ever moving!"


Sydney was diagnosed with Tricuspid Valve Atresia (TA), meaning her tricuspid valve did not form. Without it, her blood was unable to flow into her right ventricle, enabling growth, leaving her with a 3 chambered heart. She had her first surgery when she was 8 days old and her second at4 months. At approximately 2 ½ years of age, Sydney will have her 3rd surgery, as long as everything continues to progress as planned. She will never be “fixed” unless a way of creating a new chamber is discovered through further research.

Harlie has Goldenhar Syndrome, VACTERAL Association, and Congenital Lobar Emphysema. Harlie’s heart defects are: L-TGA, VSD, intermittent 2nd degree heart block, small right ventricle, and 2 small Superior Vena Cava’s. She was also born with a mass in her chest, and a variety of other physical anomalies. To date, she has had 7 surgeries and spent over 4 months total in the hospital. Despite everything, she is one of the sweetest and happiest babies you could ever hope to meet. In the past two months she has learned 21 signs, and loves show off her new communication skills, which include putting two words together. She hardly ever cries and is absolutely beautiful - your heart just melts when you meet her!

Claire is currently in the hospital with RSV - send positive energy and prayers her way! She was born with TGA and VSD, as well as a faulty valve, which resulted in her having to have a Rastelli Repair, which uses artificial material inside and outside the heart to create the figure eight necessary for normal oxygenation of the blood. If all goes as expected, Claire should be able to act like any other child. Though she will have to have at least a couple of conduit replacements as she grows, there is a bright side there as well. The conduit replacements are not quite as "invasive" as they are at the front of the heart, research on expanding the conduits without open heart surgery to prolong the time before replacement is taking place and there is the possibility through stem cell research that a conduit could be grown from Claire's own cells that would grow with her.

Sadie came into the world screaming, but quickly turned blue and was taken from her parents. She was diagnosed six hours later, when she was critically ill, with TGA, ASD and VSD. She received a catheturization that night, and took 11 days to stabilize enough for the surgery that was required for her survival. Though she suffered drastically from drug withdrawals after surgery, she quickly healed. Today she is a strong-willed bundle of energy. She will continue to receive annual cardiology check ups, but there is a very good chance that no further invasive procedures will be necessary in her life time.

Wednesday, February 06, 2008

Why this is So Important

We all know that life is fragile, and that there are no guarantees about how long we, or our loved ones, get to be here. But the families of and survivors of CHD, are exponentially more aware of this, and of every seemingly “tiny” health matter.

Every germ is the enemy, every virus has the potential to wreck havoc on CHD patients’ broken hearts. We stock up on large bottles of Purel, are on constant alert at playdates for signs of sniffy noses and stay away from indoor public play areas. Because when our kids get sick, the child's heart does as well, and their hearts are often already struggling.

Today, I received news from Josie (who wrote yesterday's entry) that her daughter was admitted to the hospital last night with RSV. She's improving since her initial, scary admission, but there's still concern over the impact the virus could have upon her heart. It’s a scary situation and one that can only be helped by skilled medical practitioners, positive energy and prayers.

Unfortunately, Josie and her family are not the only ones struggling. Today I talked to my friend Karen, whose daughter has Hypoplastic Left Heart Syndrome (HLHS), meaning her daughter’s heart is missing most of the left ventricle. She told me that she dreads the question that most people ask her – “Is there a fix for your daughter’s heart?” Here’s what Karen says...

Unfortunately my daughter's heart will never be "fixed." She has half a heart. She has been "rewired" to live on one ventricle. We will live in constant fear that her heart will peeter out. We will live in constant fear that she will get an infection that her heart cannot handle. We realize that it is a good probability that she will need additional surgeries and /or a heart transplant in her future. So, no, she is not fixed. There is not a fix for Hypoplastic Left Heart Syndrome.

One can only imagine her heart break every time she has to answer this question for the well-meaning stranger who asks it. Or how much she hates that it.

What is the point of sharing these two stories with you? The point is, that because the public is not aware of CHD, it is also not aware of the pain our families face. Of the fears. Of the overwhelming desire for “normalcy” (whatever that may be) and the inability to gain it for our children. Of the yearning we have for a "fix" that has not yet been discovered.

Because the public does not know much about CHD, there is not enough of a demand to allocate the funds into the research. Through knowledge, we can find ways to raise interest, to raise awareness, to raise funds for research that will find earlier diagnoses, fixes and cures, medications and therapies. I… WE (the parents of children with CHD)… hope you will join us as we work to spread awareness to our peers, our legislators, our corporations, our friends.

Positive Energy, Thoughts and Prayers

I have no idea how many times I've asked for them for ourselves, or for our new-found CHD friends. Today I'm asking again.

The mom who wrote the blog I published yesterday, Josie, has a daughter who has TGA and is just over a year old. Today that little girl was admitted to the hospital with RSV, and is in respiratory distress. Please send every ounce of energy you have their way today.

This is just one more illustration on how heavy the burden of CHD can be at times. A seemingly healthy heart patient can contract the smallest virus, and it can become very serious very fast. Perhaps this is why we CHD moms are so on edge about every sniffle, cough and fever.

Please keep Josie and her family in your thoughts and prayers today!

Tuesday, February 05, 2008

The Miracle of the Heart

A fellow "heart" family in the Richmond area is also keeping a daily blog focusing on CHD awareness this month. One of their entries was especially interesting to me, so I asked if I could copy it here. Here's what Josie, who also has a daughter with TGA, wrote...

When you stop to think about the process of fetal development, really think about what is happening every day, it's absolutely breath-taking. The heart is one of the very first organs to form, in fact, it begins to beat often before the mother even knows that she's pregnant, within 21 days of conception. Congenital heart defects thus occur in the first days and weeks of existence; by the time the heart begins beating, most structural anomalies already exist. Depending on the particular defect, that may only be the beginning.

Although the structures of the heart exist from the earliest days, the heart itself continues normal development throughout the pregnancy. The flow of blood through the heart furthers growth and development of the various structures. When there is a structural anomaly, the blood may follow an unusual path through the heart and thus exacerbate the defect. Other defects result not from structural problems, like our daughter's, but rather from problems with the valves in between each section of the heart. Valves are critical to normal cardiac functioning because they prevent the backwards flow of blood as the heart contracts to pump blood to the body and the lungs. In order to function properly and efficiently, the flaps must be thin and pliable and should open completely and close completely. When they don't work, either because they are too small and restrict the flow of blood through the valves, or because they are weak and leaky, the development of the fetal heart may be seriously impacted. Problematic valves may prevent entire chambers of the heart from growing and developing.

But I digress. The point of this post was to explain that congenital heart abnormalities exist from the earliest days of the pregnancy. And no one knows why. No one knows what triggers the incorrect formation or when exactly development goes awry. Sometimes, although very rarely, there is a genetic component. The vast majority of congenital heart defects have an unknown cause and therefore we don't know how to prevent them. Seriously, when you stop to think about it, a normal heart is really quite amazing!

Monday, February 04, 2008

Yes we can!



I am not a big fan of politics. In fact, it's fair to say I HATE politics. But while I may or may not share his political views or view the speeches of the candidates as rhetoric, the recent speech by Obama in New Hampshire moved me. Will.i.am of Black Eyed Peas fame turned that speech into the inspiring and moving video above. On the website he created to feature this video (dipdive.com) Will.i.am wrote:

When you are truly inspired..
magic happens...
incredible things happen...
love happens..
(and with that combination)

Inspiration breeds change...

What does this have to do with CHD Awareness? Well, to be honest, this dive into the CHD world has been a tough one for me. Though I jumped onto the idea of doing a 29-day blog-a-thon, I've found that it's hard for me to say what I really want to say. Some of it may offend. Some of it is too hard to write. Some of it is very personal. But it is a message that needs to get out to the public. At a mass level.

To me this video was a reminder... that through inspiration, change is acquired. I've been inspired by the other CHD moms who are tackling this issue by my side. And by the surgeons and cardiologists who are at this very moment finding new paths of treatment, new ways to save lives.

Take a look at this video created by a mom from the local Mended Little Hearts group . (Note Sadie's beautiful mug shots).

After gaining this inspiration, I can't help but feel a spark of hope, and an emblazoned desire to create change. Creating awareness is a HUGE challenge, but messages like these drive me to take action. Can we inspire others through our small movement? Can we cultivate this plight for awareness, and in doing so, save lives? YES WE CAN.

Sunday, February 03, 2008

Feisty

One of the things I've heard since the moment Sadie was born is that she's feisty. And I've always agreed. The child came out of the womb screaming, and screamed until the moment she was intubated, even though it was difficult, given her condition. The first time I held her she cried as loudly as she could (which wasn't that loud, as she'd just had the breathing tube removed). During the first months of withdrawal from the medications she had, she screamed. In the middle of the night she often wakes and screams. At the grocery store, at birthday parties, in the library, in the car... (you may get where I'm going here)... she screams.

Tonight she threw one of her infamous fits as I took her out of the tub (from which she and her sister had emptied an entire bottle of baby wash and were trying to create bubbles by swishing around like crazy). As I was trying to keep her on my lap while she kicked and squirmed, I saw her scar, remembered I needed to write a blog tonight, and also, felt incredibly grateful for her screams. For a few minutes at least.

It's tough having a child like Sadie that has such a "challenging disposition." But at the same time, her screams are a reassurance to me. I often laugh to myself thinking of how desperate I was to hear her cries for the first time after surgery. Though it doesn't seem like it when I'm at wits end after a day of 10-12 tantrums, I am happy that her heart is strong enough to support her feisty spirit. Heaven knows that that poor little organ must work incredibly hard.

Saturday, February 02, 2008

What the heck is CHD?!

I had an email conversation with a member of the Mended Little Hearts group this past week, and mentioned that I did not even know what "CHD" or a "Congenital Heart Defect" was until several months after she had been home from the hospital and her heart had been repaired. The other member replied that she had never heard it called "CHD" either, until the last couple of years. Interestingly enough, she is an adult survivor of CHD.

So why is it that we don't know what it is our kids have? We are given a medical diagnosis for missing chambers to underdeveloped (or missing) valves; from narrowed blood vessels to unconnected arteries. We identify ourselves as "a parent of a TGA child" or "an adult with tetralogy of Fallot" - not as part of the larger Congenital Heart Defect Community. Perhaps that is why we are so disconcerted in our efforts to join forces and create an effective awareness campaign.

When I was in the hospital with Sadie, I was desperate for information on her condition. I spent hours surfing the Internet for stories of adult survivors, for parents who could relate to the horrors of open heart surgery with their infant, and for inspiration. Never once did I Google "CHD" or "congenital heart defect" (both of which bring up tons of links I could have used!). I looked up "TGA," "Transposition of the Greater Arteries," "open heart surgery" and "pediatric cardiology."

I suggest we start to educate the social workers (who often have extensive interaction with the parents and provide links to support groups) on the importance of being able to identify CHD as being the tie that binds the "broken heart" community together. What do you think? How can we create a better way for newly diagnosed CHD families to find other heart families, websites, resources and information? Send your thoughts to learnaboutchd@gmail.com or feel free to post a comment.

Friday, February 01, 2008

Overwhelmed


Day 1 of my personal CHD adventure in advocacy, and I'm overwhelmed. In the last 48 hours I've received about 40+ emails from parents of CHD children and some of which have lost children to these series of defects. I had planned a nice commentary for my first blog of this month long venture, but can't seem to find it in myself to finish it today. So, I'll keep this simple and share with you some of the facts from the Children's Heart Foundation. I have not had time to verify all the facts they list, but from the research I've done in the last week, most seem to be right on target.
  • CHDs are America’s number one birth defect, affecting nearly one out of every 100 births, or 40,000 babies a year.
  • CHDs are responsible for one third of all birth defect related deaths, making CHD the number one cause of birth defect related deaths.
  • More than 91,000 life years are lost each year in the United States because of CHDs.
  • More than 50 percent of all children born with CHD will require a least one invasive surgery in their lifetime. Twenty percent of these children will not survive past their first year of life!
  • The cost for surgery alone exceeds $2.2 billion a year!
  • CHD research is grossly under funded. Pediatric cancer research is five times higher than CHD research although twice as many children die from CHD each year in the United States than from all forms of childhood cancer combined.
  • Research has already made a difference in the lives of thousands of children and their families. In the last decade, death rates for CHDs have declined by almost 30 percent because of the advances made through research. As more children's heart abnormalities are treated, research is needed to meet the needs of CHD patients as they reach adulthood.
There, the facts are laid out. Next up... coping with a tantrum thrower, ways that CHD has changed my perspective on life and what you can do to make a difference for a child or family facing CHD.

Wow! What a response!

Thanks to everyone who has responded and is interested in spreading the word for CHD Awareness Week! Because I've had some media interaction and don't want to share my personal blog with the world (yes, yes, I know... why do I post in public then?), I've created a sister blog, LearnAboutCHD, to chronicle the events. I've also come up with a dandy little campaign called "7 for 7" that everyone is invited to participate in!

In addition to the mad blog marathon I'll be running this month, on the 7 days of CHD Awareness Week (Feb. 7-14), I and many other CHD families, friends and supporters will be posting lists of 7. While most of us will do seven things related to CHD, you're welcome to use your imagination and go wild with your 7 lists of 7. My only request in all of this? Please put a link in the entry to one of the many CHD Information/Support sites.

Feel free to use the logo I cooked up, or come up (above) with something a bit more exciting of your own. I'll be linking mine to the new sister site, or when posted there, to CHIN (www.tchin.org), as they seem to have the most information and links of the sites I have seen relating to Congenital Heart Defects. For those of you in Central Virginia, there is a great support group here called Mended Little Hearts that would benefit from informing Richmond area residents about their programs.

And we're off...!!

Wednesday, January 30, 2008

Going Grassroots for CHD



Last week I discovered that February 7-14 has been designated Congenital Heart Defect (CHD) Awareness week across the globe. Who knew? Obviously, this campaign doesn't have the impact factor other more "popular" campaigns have.

Sadie barely survived her CHD - partly because of the type of defect she had, but MOSTLY because her CHD was not caught in utero. For 17 months I've been angry - angry with my OB for never telling me CHD existed. Angry with the precious moments that were lost that I can never recover. Angry that her warning signs were ignored. I decided this past week that enough is enough with the anger - I'm going to take that energy and turn it into positive action. So, my dear reader, you get stuck bearing the brunt of my latest climb onto a soapbox.

For the 29 days of February, (it HAD to be leap year that I decided to take this on) I'm making it my goal to post to this blog every day, each with some sort of reference to CHD (though not always the subject). From the 7-14th, I'll post only lists of 7 relating to CHD. Let's see how creative I can get. There will be some juicy stuff in there. Just you wait.

You can join this grassroots crusade, too. Find some facts on the CHD Information Network and share them in an email or on your blog. Add an image promoting CHD Awareness (see the two here!) and a link to your MySpace page, LinkedIn page, FaceBook, blog or wherever you lurk in cyberspace. Better yet, join me in a blog-a-thon from Feb 7-14 for Awareness Week. C'mon over and jump onto the CHD Awareness bandwagon, it'll be fun times for all!

Tuesday, January 29, 2008

Tradition.... TRADITION!

Among Jason's fraternity, there is this (for lack of better word) "tradition" that takes place at weddings. Alas, Jason and I were married too young, and had too "stiff" of a wedding (read no dancing, no booze, not many friends, the parents church, lots of strangers, not much fun) to have carried on this heart-warming tradition. Just one more reason we need to renew those vows.

Some of the brides within the fraternity circle dread this moment in the wedding evening. Some refuse to let "YMCA" (which accompanies this particular tradition) be played. Some fear their family's reactions and avoid it like the plague. Some are not told by their husbands that the tradition even exists, and get VERY angry and embarrassed when it happens at their wedding (rightfully so!). But there are many who laugh along and enjoy it. I've seen the tradition take place at all types of weddings - from small, intimate gatherings to huge, extravagant events.

Recently, an article was published in a local rag about "wierd, wild and wonderful" wedding moments, and guess what it featured? The Zete Psi tradition of dropping trou to YMCA. A photo was included with the article, showing two of our friends taking part in this unique tradition at their wedding last fall.

I can't tell you the number of weddings we have gone to when Jason has asked me "Which pair should I wear?" and wondered how many other women out there have to worry about their outfit for the wedding, as well as ensuring their husbands have exciting undergarments to sport at the event.

Tanya, you definitely win the award for "best bride" within the fraternity circle. Not only did you welcome the tradition, you came prepared. And made a fashion statement at the same time. Now THAT's class!

Saturday, January 26, 2008

So Lucky

I've made quite a few friends through the various outlets I've found for parents of CHD kids, one of which posts frequent updates of her daughter, who suffers the same defect (and more) that Sadie has. While she is in a much more serious situation with her child than I am with Sadie, I felt that her post read a portion of my heart, a part that I'm unable to verbalize as eloquently (if at all). I'm posting a portion here:

I can’t describe what it’s like to be a part of this new world. Things that I never once thought about, are a part of my daily life now. As parents – no matter how old your children are – you never want to think about losing them. Unfortunately, when given the very special honor of raising a medically fragile child – those thoughts never go away. They are literally in my mind all the time – lurking in the background on a good day, and more obvious on the bad days. We have certainly had more close calls than I care to remember!

So many parents and children I have read about and couldn’t help but cry – even though I have never met them and never will. Even though I have not lost a child – my imagination of those feelings are very real. Especially when these parents have worked SO hard to do everything to keep their children alive and healthy. It just seems so unfair!

But one thing I’ve started to notice more and more – is that the ones that have been honored to raise these special children feel so lucky, so blessed. How can that be? We deserve to feel cheated and bitter and angry! Well, okay, we do feel those feelings. But, more than that, we feel blessed and grateful. I find that so amazing. Those that have never spent one night in the hospital with a child recovering from life-saving surgery should feel like that. Those that have never had to learn about a rare medical condition, surgery, birth defect, how to be a nurse for their child, etc. should feel like the luckiest people on earth.

I am incredibly thankful. (Even though I am very bummed that the Packers lost tonight.) Every single day completely amazes me. Now isn’t that something?

Thursday, January 24, 2008

Looking forward to more fun in DC

Two weeks ago I had a business meeting in DC. I was to meet a lobbyist for the frozen foods industry (yes, I know, exciting, isn't it?). Luckily for me, this lobbyist had good taste and invited me to meet him at the Occidental for lunch. For those of you who are not familiar with DC, the Occidental is one of the nation's oldest restaurants, conveniently located next to the Capital. Congress was out, so we had most of the restaurant to ourselves, allowing us ample time to discuss the implications of the recent outbreaks of salmonella in microwave foods (yes, again, please contain your excitement).

A few minutes into our meeting, a gentleman walked into the restaurant with a shadow (bodygaurd) and waived at my friendly lobbyist. A few minutes later, introductions were made and the Secretary of Agriculture (who I called Mr. Secretary and who in turn told me to call him Chuck) joined us for lunch. Fancy schmancy. Of course I had nothing of interest to say, but he humored me by asking a few icebreakers before discussing the current issues facing agriculture with the lobbyist.

As I left the meeting, the maitre d' asked if I'd enjoyed my lunch (which was a small piece of salmon placed on pineapple and surrounded by clover... yum), and I replied I had. He then said he thought I'd made quite the impression on the Secretary, and that he hoped I would be back to visit often on business. He clearly had NO clue who I was.

I walked out of the restaurant into a 75 degree day in January. A homeless man smiled and waived (again, for those not familiar with DC, that is NOT normal). The valet whistled as he went to get my vehicle. The sun shone. And I wondered for a fleeting second what my life would have been like if I'd followed any number of different routes in my professional career.

As soon as I got into my vehicle, I got on the phone and headed toward 14th street. I was eager to tell of my newfound love of DC and famous encounter. I managed to get onto Constitutional Avenue before reality checked in. Reality this time came in the form of a friendly DC officer blaring his siren at me and flashing his lights. There was no where to turn off, and it was a two lane road, so I turned on my blinkers to acknowledge I saw him, slowed and moved to the right. His bullhorn blared that I should get off the road, so I drove some more, looking for a spot to pull off. His bullhorn blared again to stop immediately, I saw a spot on the side of the road, so I stopped and pulled onto cobblestone. Which just happened to be a national landmark. I received a ticket for talking on a cell phone (a $100 offense in DC), a written warning for not having an insurance card with me (I had only a card with my insurance ID that did not have a expiration date, which apparently is normally another $100 in DC) and a verbal warning about desecrating national monument property.

I had driven well past the road I would normally turn on, so kindly asked the officer (a little stump of a man with obviously low IQ and equally pitiful self esteem who thus needed to overreact to the situation) to point me toward the 14th street bridge. To which he replied, "I'm not from DC." Hellooooo... you're a traffic cop in DC!! Give me a break. So I wandered, luckily found my way to Arlington Cemetery and finally got onto 395. Ah, DC. You ARE what I remembered. For a moment you had me fooled, you wily district, you!

Tonight I'm back in NoVa (that's Northern Virginia, for you nonlocals), awaiting another trip into DC tomorrow for a conference on more microwave food safety issues. Needless to say I'm taking the Metro in this time. I can't wait for a homeless person to accost me, demanding that I purchase a used newspaper for $2. I will gladly oblige and bask in the dysfunctional city that is our nations capital.

Wednesday, January 16, 2008

The New Year

Well, we're already half-way through the first month of the new year, and I'm finally finding a moment to sit down for an update. This year is going to be a good one, I just feel it. Even if it's not great, it has to be better than last year! I've never been so happy to leave a year behind in my life. It was stressful on all fronts - work, kids, house, relationships...

So, this year I'm actually making a few resolutions to ensure it's a better one. I started out with only two, but as the year opened up, I found a few more I want to add. Here's what I've got:

  1. I'm not going to take the backseat in my life anymore. Don't get me wrong... I will always help others when I can, but not at the expense of my emotional health, nor my family's. Last year I tiptoed around quite a bit, not wanting to hurt anyone and bending over backwards to accommodate what I thought others wanted of/from me. This applied to a variety of aspects of my life both personally and professionally. So, this is the year of taking the reigns back, which leads me to,
  2. I will make more time for fun. With the kids, with the husband, on my own. Life is too short not to be having more fun! This means expanding my social network that shrunk so much over the past two years, getting to the theater more often, trying new things, having more girls nights out, etc.
  3. I'll learn how to take care of myself again. Since I work from home, I rarely put on makeup, "do" my hair, etc. Because of child and work obligations, I forgot how to take time and take a bath, go for a walk by myself, shut myself in my bedroom and read a book without interruption, enjoy a moment of silence. I'll start MAKING time to go to the gym (already have started to return to that routine), even if it means missing an hour with the kids, the husband or the pets.
  4. And then there's the ever-present (it seems in my life) need to lose some weight. Yeah, yeah, that too. It fits into #3, but needs to be broken out so I can see it in writing. Time to get back to pre-baby weight again. I can and will fight the battle of finding an elliptical at the gym in January (amongst the hoards of other resolution-makers) and will stick with it through the end of the year when the gym once again echoes and I have my choice of machinary.
That's the lowdown on the soon-to-be new-improved Kim. More backbone, less fat, more fun. Sounds good to me. Plus we have some fun stuff planned. I'm heading to Boston in February for the Consumer Trends Forum (shameless plug for my client organization... it will be a GREAT meeting packed with lots of insight into current consumer trends), to Hatteras in May with a group of friends to try out scuba diving in frigid waters (if we can get our certification in time), to one of my fav cities in the US - New Orleans - in June for some Cajun cookin' and microwave science (again, client meeting) and then to the big one... Lake Biwa, Japan for an international microwave science congress. I can't wait to go. Jason will be coming with, and we are saving and planning now to make it the trip of a lifetime. It will be his first trip out of North America!

Happy (belated) New Year!

Thursday, January 10, 2008

Kid Flicks

Surprisingly enough, our video camera broke. So, I had to get said promised videos promised weeks ago to this viewing audience on the digital camera, and they're low quality. All the same, they are definitely the two favorite movies I've viewed this past year. Enjoy!

1. Katie's Concerto



2. Sadie's Jungle Boogie

Thursday, December 27, 2007

Christmas Photos



Yeah, they're gorgeous. And full of it.

Wednesday, December 26, 2007

Best of the Holidays

It's been another whirlwind month, and I haven't had a second to sit back and update the blog in days. I hope all of you out there have had a very merry Christmas!

Despite the kids continuing to share sicknesses (Sadie's turn right now, Katie's was last week), we've managed to have a great time getting ready for the mack-daddy of all children's holidays. Here are my top highlights:

  • The look of wonder on Katie's face as the curtain went up for the opening scenes of the Nutcracker. This is the first year we've taken her, and she was drawn into the show from the first notes. She didn't sleep or complain once (which is pretty impressive for a 5-year old). She sat with a look of wonder mingled with pure joy as the scenes changed, dancers flowed across the stage and the orchestra played. Shame on me for not introducing her to live arts earlier. I've decided that we'll be hitting some classical concerts, dances and theater several times in '08.
  • Sadie and the "Christmas balls." She loved the glass balls on the Christmas "Flower" (she refused to call it a tree). She would carefully remove them and feed them to Carly Sparkles the Pitbull Pup, who daintily chewed and spewed glass shards throughout the living room on multiple occasions. At least twice I emptied her doggy bed chock full of glass. Not once did I see a cut on her mouth, nor in Sadie's bare feet. Truly a Christmas miracle.
  • Katie's Christmas tree. Katie got her own tree in her room this year - bright pink and "bling"ed out to the max. She rearranged the decorations often and took great pride in her additional decor (hand-painted items she made, garish garland draped over her windows, etc.).
  • Presents for the kids. We spent way too much this year. I admit it. But the good news is taht according to American media, we did our part for the economy. Katie got a (I know, I know, reliving my childhood wishes) Barbie Cadillac Escalade power wheels. She buckled Sadie in and tore up our yard all morning. It came with a built-in radio, and reverse features. She'd back it up to her play set and swing to the good songs that came on. Sadie got a Dora kitchen, complete with 44 bilingual phrases. Maybe she'll stay out of my cabinets now (haha). She is having a blast with all the noises, and taking things in and out and "feeding" us gourmet toddler meals.
  • A "real" kitchen. Yep - we now have working appliances once again! I can wash dishes in a dishwasher, heat things in the microwave, cook on the stove and (gasp) the water filter in the fridge actually dispenses water. While replacing the appliances, we had the brilliant idea of sanding and restaining all the cabinets, replacing their hardware, tearing up the hideous tile and placing new flooring. My kitchen is pretty now. Yay. And it works. Bigger yay.
  • Hark the Herald. Katie learned every word of it. I'm going to try to get it on video tomorrow and will post it. She sings it with such earnesty and sincerity. It's hilarious.
  • Dancing. Sadie learned to dance this past week, to Christmas music. Again, an item that must be uploaded on video. It's something between steppin' and an Irish jig, baby style. The kid has talent.
From the Thies household to yours, I hope you, too, had a merry Christmas!

Saturday, December 08, 2007

It's broken...

You can say that about every big ticket item we own almost. This quarter has resulted in record spending in our household, and NOT for Christmas gifting. The death toll includes:
- Over the range microwave
- Oven
- Dishwasher
- Refridgerator
- MacBook screen
- Central heater for office
- Jason's computer (HP)
- Retaining wall in front of our house

Just when I thought we were done with things giving out on us, the battery died on the truck two days ago. No biggie - my sister got it switched out and it ran again. For about 24 hours. Then as I was driving to one of Katie's friends houses yesterday, it died again. We jumped it, got back on the road and less than a half mile away, the lights started flashings, strange beeps followed, the steering went out (which is a BIG deal with an Expedition), then the brakes. Luckily we were on a dirt road and I managed not to lose control and got off to the side of the road. Diagnosis? One alternator. Sweet. My mechanic brother-in-law advised that this is the beginning of the end for the 10-year old truck I love.

I called a tow truck, mom came and rescued us from the side of the road and we got home safe and sound. The tow truck driver informed me that this was the beginning of the end of the truck. Thank you. So I've heard. I came inside, warmed some leftovers and sat down at our brand-new dining set to feed Sadie... and the chair leg split down the middle.

Sadie, of course, thought it was hilarious. "BowKin" "BowKin" she keeps telling me this morning, pointing at the chair laying on its side in its carnage. Then she laughs. Yeah, kid. HILARIOUS.

Monday, November 26, 2007

Enchanting Chicken Pox

Katie surprised us all over our long Thanksgiving holiday with chicken pox. Luckily, she'd had her first vaccination (you need two, we found out) and it was mild. But still, it was no fun for her. Will Sadie be next? I'm taking her in tomorrow for her vaccination (they were out last week and the week she went in for her annual shots), so hopefully we can get it taken care of before it gets too bad. So far, no spots.

To celebrate the drying up of the pox, Katie and I had a girls night out. We went to the craft store to shop for ornaments to adorn presents with (which Katie will be making), then went to see the latest Disney flick, "Enchanted." The critics gave it a B, so I wasn't expecting much. Turns out, I was pleasantly surprised. Sure, I knew most of the plot and could guess what would happen next, but hey, it's a kids movie. However, I didn't guess the ending, which was a fresh and crisp contrast to the fairy tales of yester years - some girl power to the max. I was thrilled. Only Pocahontas (which I hated) and Mulan (which I loved) have given girls the creds they deserve. This is one movie I'd be thrilled for Katie to watch over and over (which she likely will). More strong women need to be present in kids movies. Good for Disney. Thank you for making movie-going with kids a smidgen less painful.

Wednesday, November 21, 2007

Carly Sparkles

This is what happens when you let a five year old name the new puppy: Carly Sparkles... the pitbull.

I knew that this puppy would likely be a challenge. I imagined that she would teeth more than the average pooch out there, and destroy more based on her jaw muscles alone. What I didn't realize is that pitbull puppies are much like sharks... with thousands of teeth that are constantly falling out and growing in. Daily she chews at least one toy, a sock, a hairband, sunglasses, moulding off the doorways, etc. One may say to me "well, you adopted a pitbull puppy, what did you expect?" And alas, I have no cute response to this. Darla did her fair share as a pup - ruining the carpet in our brand-new condo, eating pens and spewing ink daily - but Carly Sparkles takes it to a whole new level. Honestly, I often wonder if she's pissed off about her name.

The best part about Carly's name is that Carly means little and strong. Which Carly was (now forgoing little for more of the strong side of things). What I didn't know is where Katie came up with the name from. I found out at a preschool function recently, when I introduced myself as "Katie's Mom" to a woman standing beside me. "Oh. I'm Carly's mom," she said, and my heart skipped a beat. She quickly followed up with, "I heard you named your new puppy Carly, too." Lovely conversation starter. I wanted to wring Katie's neck. I blundered on about what a beautiful name it was, and that I had no idea where Katie had come up with the name. She looked less than impressed. I left with an awkward "nice to meet you" and haven't spoken with her since.

Back to Carly Sparkles. If anyone knows of a good trainer in Richmond, send me their way. I had thought I was the mac-momma with animals, but Carly's teaching me a few lessons.

Speaking of Macs (total stretch there, I know), my three month old MacBook Pro 15" notebook is TOAST. Done. Mac said I could replace the screen for $1200 through them. As if. They also said that the only way it could have cracked is through blunt trauma to the screen. Not true. Close it when its hot. That will do it. Others have reported this problem, though not often. I suspect that, as this new MacBook was just released this summer, that we will see lots of these stories in coming months.

The interesting thing is that I got back home, and using the half of my screen on the laptop which still works, did a quick google. Turns out there are lots of people who can fix it for less. MacService.com was the one I chose - $495.

I have this to say about Mac. I've been a total, devoted disciple of your products for over a decade. This is the way you treat your customers? Blindly rob them for a repair that costs, AT MOST, 1/4 of your quote, after they sink thousands into one of your new products? That is not the way to gain new customer loyalty, or to retain long-time customers. I will not be buying a new Mac for many years to come. I may even stop sniggering at the Mac vs. PC commercials I've so loved. It's that upsetting.

Monday, November 19, 2007

The fun just won't stop

So... Sadie's sick this time around. Total sick time between Katie, Sadie and myself (without break) = 3 weeks and counting.


Also, my brand-new MacBook Pro that I got to replace the stolen iBook has a cracked screen. Cost of repair, $1200. Thing is, I did nothing to break it. It was running very hot, so I decided to close it, give it a break and take it upstairs. These MacBooks run hot, and it's a common thing. It's supposed to shut off if it gets too hot. Fifteen minutes later I opened it and voila' - large black spots connected by a spider web. Better yet, half the screen promptly turned white, then got lines going up and down it. Good news is half the screen works.

Also, it's running about 75% of the time since the bizarro screen "accident." This is a 3 month old computer that cost more that $2500. I am not a happy camper.

This is the 4th Mac I've owned, and I've never been disappointed until I got this one. This is by far the most top-of-the-line one I got, but from day one there have been little "glitches" I don't like - its Airport isn't as powerful as my iBook G4s was. It's frozen several times when I have multiple graphics programs running. Granted, they're super powerful programs, but this is a MacBook Pro... it's DESIGNED for this stuff and should do it in its sleep mode. I've looked around on line, and it seems like everyone's pretty happy with them, minus battery issues and power plug fraying. Except if the screen cracks. And it seems like a lot of the screens crack. It's not covered by warranty, they say, because it's blunt trauma from an accident... usually. 

So, I'm sitting at the only Mac store in town, which is full to the gills. Waiting for a "genius" to tell me my screen is cracked, which I already know. And ready to fight the "accidental" clause (which I'm sure is what they'll say caused this). Wish me a bit o luck, please. 

Sunday, November 18, 2007

Bragging Rights

I'm long overdue on bragging on my kids... so here's the latest and greatest on the girls.


Sadie was a flower sprite for Halloween. She started walking at 12 mos 2 weeks, and has been on the run ever since. She's now 14 months, and has at least a dozen words in her vocabulary, including her newest: Buuhrrrrd (bird), Fower (flower), Dawa (Darla - our senior citizen canine), Tayteh (Katie), Ni-Nah (Kerinda)... and those are in the last week. Her vocabulary is almost doubling daily now.

She also has lots of great animal sounds and can pick out the animals (e.g. Where's the penguin?) for more than 75% of Katie's Schleich animals (if you don't know what they are, you don't have a kid under 10) and knows who moos and who baas and does a great tiger (RRRaawwwwhrrr!) that scares the puppy.


Katie was Barbie Island Princess for Halloween. Somehow, in the last year, she morphed from my fun-loving tomboy into a princess dressing, nail painting, love sick five year old. It's crazy how fast it goes. She thoroughly enjoyed Halloween this year, and is still working on the giant pumpkin full o candy.

We put her in a "normal" daycare this year instead of a Montessori, and I think it's had negative effects. Her bi-annual "evaluation" came back last week with things like "she knows all her colors" (what 5 year old doesn't?! She knew them at 18 mos!), she does well cutting shapes (again, she was doing that at 3, so what's new?!) and she's a "joy to have in the classroom." I shouldn't complain - the school is full of nice people. I just miss education. Guess I better get used to it since we have to do the public school routine.

We're working at home on reading and math, and she's great with addition and initiates math "games" on her own all the time now. She is reading 3-5 letter words, and loves to practice writing. I wish I'd put her in Kindergarten this year, but was worried about the potty issues, which still persist.

Playing on the beach. Don't be fooled. It is rare for the girls to be in the same 10' radius and not be fighting. This is a rare photo - kind of like a sighting of a UFO or BigFoot. And no, I didn't use photoshop to get this.

While I can't stand the bickering, it is good that Katie is finally free to be a sister, and not a caregiver. She no longer worries (too much) about Sadie's fragility and now fights back like any big sister would do when pestered to death by a strong-willed toddler.


Peek-a-boo! Sadie's running around the house now. For a few weeks she walked with her arms thrown up over her head. Just this week it stopped, and I already miss it. She's bending and picking up without falling, and loves to feed the new puppy everything... food, hair clips, playdoh, paper, Katie's favorite Schleich animals... the list goes on.

Friday, November 16, 2007

Back from Haites

So, we're back. Katie ended up being sick the entire week, except the last two days at the beach. It was in the 80s the day we got to the beach (when Katie was still very sick), but dropped to the 60s that night and stayed there (when Katie got better). We defied nature and went out on the beach anyway... freezing our butts off and playing in the sand.

Those moments out there on the beach made the entire trip worth it. It was only a couple of hours total, but I thought to myself that these are the moments you want to record in your mind for replay again and again. Just me and my girls, hanging out. Sadie chasing the seagulls and trying to walk through the deep sand. Katie singing to herself as she made a castle. An egret landing beside us to watch, as the waves lapped quietly beside us. Despite the cool weather it was beautiful, and the beach was empty. I wish we could have stayed longer.

On the final day of the trip, I woke up in the middle of the night with my heart racing and a 102 temp. The virus struck again. Friday I took them out on the beach again for a few minutes anyway, then we drove to Tampa to stop at the aquarium. The Florida Aquarium is great - the girls had a blast checking out the octopus, watching jelly fish, petting sting rays and climbing through 'hermit crab shells' in the play area. I couldn't eat, could barely walk and was exhausted, but enjoyed it all the same. We left from there for a one hour trip to Orlando, where we went through security crap once again (why do they pick on moms traveling alone with small children?!) and finally boarded our flight with only moments to spare. This flight was empty, so we had an entire row to ourselves. It was nice, though Sadie refused once again to sleep until we were coming in for a landing.

I've been sick all week with the lovely virus, and just last night Sadie came down with a fever and cough, so I guess it's her turn. This thing lasts 5-7 days minimum, so I'm not looking forward to it.

Tomorrow's Jason's birthday! I think I'll send him to the VT game to get him away from the sick and cranky girls in his household.

Monday, November 05, 2007

More Tales of Woe during the TripFromHell

THURSDAY NIGHT
Katie develops croup. She coughs all night.

FRIDAY MORNING
Katie seems better. Sadie's measles are residing. All seems to be getting better.

FRIDAY AFTERNOON
Katie spikes a fever of 103. I start the Tylenol regimine, after being scolded by her pediatrician long-distance for (gasp) using cough medicine the previous night. Heaven forbid you use cough medicine when your kid coughs. Why is it the FDA is so quick to OK get-slim-quick drugs and life-risking birth control, yet all of a sudden all children's cough medicine, some of which has been used in some form for over 100 years, is now deemed terrible?! Someone please explain.

The night progresses, with Katie and Sadie alternating coughing/screaming fits all night. A few hours later it's morning.

SATURDAY
Katie is sick. Katie is very sick. She doesn't eat. She quits drinking around 7 pm. Her temp won't go below 101.

Sadie discovers that her molars are coming in. The measles are almost gone. Now it's just pain and crankiness.

Again, with the nightime routine. I don't even bother trying to sleep. I just sit in bed waiting for the next kid to cry. I do doze on a twin bed with Katie, awakening with a start to realize I've probably caught her bug since she's breathing in my face.

SUNDAY
We head to the emergency room at the Pediatrician's recommendation. Katie gets IVs for a few hours, and is sent home. She can't keep down water/anything still. She pukes all day, and all evening. Finally, at night she sleeps. The fever drops to 101 again.

MONDAY
Now I'm really behind in work. I worked until 2 am since both girls slept, then got up at 4:45 (after Sadie's wake up call at 3 for a bottle) thanks to good ol' daylight savings time. Katie slept through the night, and her fever got down to 99 by the morning... finally light on the horizon. She still won't drink, still has not eaten, and was still throwing up this morning. She hasn't thrown up since 3 though, and has taken about an ounce of water, so there's hope. Poor thing.

Tomorrow...

Off to the beach for my meeting. The kids are going still, with the in-laws, as I have no choice. I don't want to be hours away from Katie when she's so sick, but hate to move her to a hotel. Wish us luck...

PS - Tally on Panera coffee thus far... 8 large cups.

Friday, November 02, 2007

Best idea EVER

I decided that since I needed to travel to Florida this week for business, I'd add on a few days and take the kids with me to see their grandparents (my in-laws). This has been the "best" idea ever.

Let me paint a mental image of my last two days for you...

WEDNESDAY - The day before departure.

Sadie breaks out in Measles pocks everywhere. Turns out she's one in 5000 kids that has a "moderately severe" reaction to the MMR vaccine. Sweet. That explains the 103 fever she's had off and on the past week. She doesn't go to sleep until 11 pm, and then sleeps fitfully, in 20-40 minute intervals.

Add to this that it is Halloween. Both children are hopped up on sugar and insanely wild.

Add to this, too, that I screwed up our flight reservations and realized on Monday that instead of leaving on Sat., we're leaving on Thurs. So work is a mess, and I have to do 3 days of work in 24 hours, before hopping on a plane to retirement hell where there is only one WiFi hotspot for miles (where I currently sit blogging... thanks Panera).


THURSDAY - Travel day.

I get up at 5:30, after about 2.5 to 3 hours of intermittent sleep to drag everyone out the door. Jason helps with the bags and kids, and we miraculously make it on time for our 8:00 flight.

Getting into the airport is fine. We have a skycap help. Getting through security was another ordeal entirely. Katie goes through fine, but then they decide I more or less need to strip the baby down, put the stroller through the conveyor belt (it doesn't fit and I've never had to do this before), take my LCD projector out and plug it in (seriously?! I've traveled all over with it and NEVER had to do that. They didn't even check the laptop!),... all AFTER Katie is on the other side. They won't let Katie come back to me. She's terrified and crying. I'm uttering words that should not be said in front of my 1-year old, hoping she won't pick up on them. (She tried to say one, but seems to have forgotten them today.) The security guard warns me about my "lack of cooperation."

We finally get on the plane, which is, of course, full. I hold the screaming Sadie for 2 hours. She falls asleep 10 minutes before landing. Then awakes screaming as we're to disembark. I got lots of nice looks from fellow travelers.

Orlando's airport is HUGE. I drag Katie and Sadie to the bathroom, we all get taken care of, but only with lots of juggling, hand holding and door propping so we can keep eye contact, as Katie is now terrified of airport security, who may "take" her from mommy again.

Katie decides she doesn't want to roll her little suitcase anymore. Nor does she want to walk. I'm half-dragging her, pushing a stroller and pulling the computer bag/Dora bag/diaper bag down the halls. I hear women clucking and saying how tough it must be to be traveling alone with small children. No, you don't say?! Would you like to grab a freakin' bag instead of walking behind me and making loud comments? And NO, I'm NOT a single mom. Just stupid. Out of my way, biddies.

We get the luggage and I make a half-mile long train of the five items of luggage, which I pull behind me to the car rental lot, as I drag Katie, push Sadie and pick up objects randomly thrown by Sadie along the way (shoes, jacket, socks, etc.). It's pouring. Of course.

Two hours later we're in retirement hell (Sebring Florida). All the way Katie asked if "we were there yet" every 5 minutes. Sadie finally slept.

Exhausted, I got the kids to bed at 8 and 9. Katie awoke at midnight (25 minutes after I hit the bed) with a fever of at least 102, croupy cough and sore throat. The girls then took turns waking up every 30 minutes until 6:15 this morning, when I gave up and let them out of bed.

Yes, this was DEFINITELY my best idea EVER!!

Saturday, October 27, 2007

When it rains...

it pours. Seriously. Talk about the theme of the week!

It's been pouring literal rain for two days now, greening our lawn, encouraging our puppy to poop only indoors. I'm thrilled to have the rain, even if it has been more than 4.5 inches in the last 24 hours.

Other things have been pouring into my life this week, too.

Last week phone calls began to come in for one of my clients, the International Microwave Power Institute (yes there is an association for everything) regarding a major national recall of a microwave product. It's devoured all of my working hours, and then some. I've found myself researching food safety and microwave science articles of the last 20 years to write a response for the public. There is nothing I could think of that would be more fun than this.

Just when I was feeling like I would absolutely loose what few granuals of brain cells I have left up there, and that my daily life stress levels were about to top the charts, good things started happening. For the first time in over a year.

1. I finally talked to the right person at UVA, and managed to get almost all of Sadie's medical bills wiped clean... in ONE day. This may not seem like a feat to most of you out there, but consider this. According to my records, I have spent 118 hours on the phone with UVA and Anthem this past year (I did not record early hours, so it's actually more, I'm sure). I called them almost weekly for 6 months straight. We have paid fines, penalties, listened to collections calls, fought, cried, begged, took it to an appeal, took it to the state, contacted a congressman... and all we needed was a different phone number and one woman's name. Don't get me wrong - I am thankful. I am ecstatic. I am still waiting to see that paid-off bill in writing though, before I can breathe.

This has consumed almost all of my waking hours lately. Our family's financial health was at stake. We were losing everything we'd worked so hard for, all because of a loophole in insurance regulation. I'd been pulling my hair out each month, agonizing how we'd make it. I went back to work full time. I cut staff hours to increase income for our family. It's been nuts.

Then, with a magic phone number, 10 minutes on a call and a very sincere apology from UVA, I found out it was all a misunderstanding. I am too tired to be angry that they started sending collections after us with a 1 million dollar bill the day after Sadie's surgery. I'm too worn out from it all to even be ticked that they threatened legal action. I'm just done. I feel like I could sleep a year. I may take a nice long nap to celebrate when and if that final bill with "paid in full" written on it gets here.


2. Out of the blue, I got a call from a recruiter in Texas, looking to fill a position in a hospice in Florida. At first I said no, that I was not interested, even though I sounded like a good fit. Then Jason and I got to talking about it. Why shouldn't we consider it? I'm working a bazillion hours a week, so who am I kidding in thinking that this lifestyle of trying to be full-time stay at home mom and full-time working mom wrapped into one is healthy for myself or my children? So, I'm taking a chance. Worst that happens, I get a no. Or maybe I hate it there, and I say no. Or maybe I love it. We'll see. It's a new thought for me, and it's kind of exciting.


3. Out of the blue, about two days after the call from the Texan recruiter, I get a note requesting a bid for a new client. Hmmmm. So I figured what the heck. I'm just going to throw it all up in the air - put myself out there and see what happens. Maybe nothing happens. Maybe I'm in the same spot I'm sitting in now a year from now. Or maybe life could change drastically in the next few months.


I think the big guy up there is sending major waves my way, telling me it's time to shake things up; to shrug off the anger, hurt and pain I've been internalizing and battling all year and to move on with life. Even if nothing comes of this, it's making me think about life in a different way. Of what I could be doing that I'm not now. And it's kind of exciting, I have to admit!

Wednesday, October 10, 2007

So in love


Our new puppy arrived last night... all head and paws. She's clearly a German Shepherd/Pitbull mix, with possibly some Lab thrown in for good measure. She's so cute we can hardly stand it.

We still haven't settled on the right name yet - though I'm probably going to try to convince Jason to let Katie have her way and go with "Sparkles". Both of us hate the name, but Katie loves it, and has taken to calling her that already. What can you do.

As mentioned in a previous blog, the puppy was rescued from a dumpster, where she was placed in a airtight tote in 100+º weather to die. Three did die, though four survived - she is one of them.

When Katie saw her at the fair, apparently it was love at first sight. To be honest, I had my eyes on another pup, and didn't even notice this one. On our drive home that night, Katie talked about the puppy with the "curly tail" (I hadn't noticed her tail) and how much she loved her. The next day she told me that she and the puppy were meant to be together, because the puppy had come to her and told her when she met her at the fair. The next day she was in tears, because I had a short temper (possibly from hearing about the puppy nonstop) and told her that we didn't even know which one had a curly tail, and we weren't sure if we'd be able to get that one. Finally, we got the interview (from AARF, the rescue league that saved this little girl's life), and were asked which puppy we wanted. I told them the one with the curly tail. And now she's here!

Last night Katie told me that it was the happiest day of her life. She said, "Mommy, my puppy and I were meant to be together. I love her so much!" And today's quote took the cake. She was on the floor, cuddling with the puppy when she looked up at me with tears in her eyes and said "Mommy, I'm so in love with my new puppy!"

Sunday, October 07, 2007

Mending Little Hearts


Two weekends ago, Katie, Sadie and I participated in our first "Poker Run" for Mended Little Hearts, a Richmond-based chapter of a national support organization for families of children with CHD. A poker run, we found out, is a charitable event common in the biking community. About two dozen bikers came out for the event, sporting Harleys and Hondas for a good cause.

The best part of the event was that one of the riders that day was a man named Dr. Peeler. It just so happens that Dr. Peeler is the surgeon who saved Sadie's life when he performed the aortic switch and VSD repairs on her heart. I can't tell you what it feels like to see the man who held your daughter's tiny heart in his hands and have a few non-hospital moments to chat. In the hospital he appeared to be cold and aloof, and, frankly, a real jerk. In our real-life encounter, however, he was candid and even funny, telling stories of how he swindled his wife and UVA into allowing him to escape for a weekend bike ride.

I had written him an email several weeks earlier, in my mass-thank-you efforts around Sadie's birthday. He commented on what it meant, and how little correspondence or news he receives on his patients. You can bet that I've added him to my holiday card list!

Check out Sadie's first attempt at pigtails in the pic. :)

Rejuvination


The husband and I took off this weekend for a long-overdue road trip to Blacksburg for a weekend, leaving our kids in Kerinda's (my sister) able care. It was Jason's fraternity's 40th anniversary, and brothers from the class of 69 on up were all there to celebrate. We had a great time seeing a lot of friends we hadn't seen in ages, hanging out and making fun of freshmen chicks.

On the way into town on Friday night we enjoyed a beautiful sunset - something I'd seen a hundred times or more while living in the mountains, but not once since moving to Richmond. We both enjoyed seeing the almost flouresent colors of the maples just beginning to drop their leaves. As night fell and we drove into town, I gazed up at the ultra clear sky, and enjoyed picking out constellations I'd forgotten in the two years we'd been gone. I felt like Dorothy, revisiting Oz with it's colors and vibrancy. I kept thinking how everything looked so ALIVE, so crisp and clear. I could breathe better, I felt lighter, and I was able to clear my head and just take a moment to exhale.

On Saturday I took off by myself for the day to visit my old haunts in my favorite town. I took a quick drive through the mountains, visited campus and fed some ducks at the pond... visited the old neighborhood, stopped for the obligatory trip to the bookstore for more VT crap and wandered down Main with a cup of Mill Mountain steaming in my hand. I couldn't have asked for better weather or a better season to make my first return to the Burg in over 2 years. I came back with scraps of paper jotted with a million ideas for my clients, the office, a new business that I've been pondering for a few years, and generally making my daily life better.

I also came back with a renewed pride for my alma mater, and Blacksburg. The town has come together incredibly since the tragedy on April 16. The town has always been friendly, but seemed even more open and embracing than ever.

It was incredibly emotional to see the memorials and signs that has been placed throughout campus and the town in memory of the victims of that fatal day. The town of Blacksburg had placed flag poles for each victim lining Main Street, in the only open area downtown has - on a strip of grass that was donated by a church. It was beautiful to see the flags (each one representing the nationality of the slain individual) lit at night.

On the busy, bustling drillfield the students had chosen the most beautiful spot on campus to create a memorial, which was made permanent by the university several months later. A stone was placed with each victim's name, carved from the same "Hokie Stone" that is the very foundation of our campus. I was struck by the way in which students lowered their voices when passing, the variety of persons paying tribute at the memorial, the notes left by the stones for friends and loved ones, and a single rose, laying in the middle, next to the stone proclaiming "We are Hokies. We will Prevail." I took the time to go through it, reading each name, and the gravity of what the families and friends of these victims must have, and still do, experience really sunk in for the first time since that fatal day.

I left Blacksburg reluctantly today. While I was incredibly anxious to see the girls and get back to my daily life with them, I couldn't help but notice the haze, the dimmed colors and the diminishing natural beauty as we traveled Eastward. I'm happy to be home with our family, and ready to move onto the next adventure, but I think I may have left yet another piece of my heart back in the 'Burg.

Wednesday, October 03, 2007

Be careful at the fair...

For the first time in well over a decade, I headed out to the fair... this time with the family in tow. The Virginia State Fair is held only minutes from our house, so I figured it was worth checking out. We had a great time - Katie rode every ride that she could manage to convince the carnie's to let her on; Jason had funnel cake, which is one of his favorite things in the world; Sadie jammed to the loud music and lights on the midway, amusing passersby with her astounding dance skills.

We saw it all while we were there - the biggest pumpkin ever. Some fancy eggplant from NoVa. A giant bin of corn to play in. A winning kumquat. Prize winning bulls. World's smallest woman. More mullets than I even realized existed. Then we hit the Young McDonald's area. That is where we got into trouble.

Our state fair adventure ended with:
- A sleeping baby in a stroller. For the first time ever. She never sleeps in her stroller. Ever. Apparently she needs massive stimulation for 4-5 hours straight to do the trick.
- A light saber that is constantly left on, changing colors and blinding me.
- An empty wallet and heartburn due to bad fair food.
- The little girl in this photo

Yes - she's ours!! We'd been watching for puppies for a while. I made the mistake of looking online recently, and found that a litter of lab/pit mix puppies had been abandoned in a Richmond area dumpster 7 weeks ago, locked in a plastic tote in 105 degree weather. Three had died, four survived, and are now up for adoption. And they were at the state fair. We saw them there, and that's where our biggest splurge was made. We had to apply for adoption of one. HAD to.

This little gal will be joining our family early next week!! I'm not sure how Darla (our 10 year old hound/cocker mix) will take it, or if the cat will tolerate her, but we'll see. Wish us luck! And be careful if you're going to the Va Fair this weekend. Those puppy dog eyes will get you.