Not what I had planned...

I awoke this morning, once again, to chaos and disaster. This time the girls had taken the newly purchased DragonBerry Shampoo and Blueberry Burst Body Wash and lathered everything from waist-height down on the lower level of our house into bubbles (or at least applied a slimy film which would later be "bubbled"). Seriously, what did I do in my past life to deserve this retribution?!

Every baby doll, both dogs, the coffee table, all the Disney plasticine toys, the Shliech animals, the bathroom sink, floor and both girls' lower extremeties were covered in the sticky goo. "But Mommy," Katie told me as I repressed a scream of rage as I realized the magnitude of the latest morning disaster, "We didn't go outside. And now the house smells good." I rinsed and washed, producing even more bubbles (much to their delight) and still found a spot on the carpet that is deeply stained with shampoo. I ran the steam vac over it this afternoon only to... you guessed it... produce more bubbles.

I threatened Katie with an eternity of time out if she makes one SINGLE other mess before I can hit the bottom of the stairs in the morning. Double eternity if she lets Sadie out of her crib. Her reply? Sadie can get out on her own now. Oh crap.

I never got a chance to memorialize George Carlin, one of my all-time favorite comedians who passed away last week. I did so this morning by muttering, thinking or screaming into a pillow six of the seven dirtiest words from his old 70's routine. The 7th word just didn't apply, or I would have used that one, too.

To make it all even better, I'm having some hellacious withdrawals from a medication I started a couple of months ago. When I had Katie, I began to suffer from anxiety attacks (though I didn't know that is what they were at the time). I did some medications back then for a few months, got my head screwed on straight again, and weaned off of them. I'd been able to control them since (now knowing what they were and how they came on) on my own, but in March they began to rear their ugly head once again. I wonder why? That was about the time the girls started their early morning escapades. So, I went to my primary care "nurse" (do doctors still exist?) and asked for something to help me along for a while. She gave me Cymbalta.

Two drugged-out weeks later I started having weird symptoms. Increased anxiety (but no panic attacks) and newly onset depression that I'd never before experienced. Insomnia. Cold sweats. Hot flashes. Irritability (yes, I can be worse!). Constipation like a... well, like it was not good. Then last week in New Orleans it doubled, and I added the shakes to the list. Enough was enough, so I quit. Cold turkey. I had only been on it for about 50 days, so figured I'd do every other day for a week and stop.

Now I have more fun symptoms. Night terrors (which I've never had before). Aching all over. Sharp pains in my legs and feet. Blurry vision. Extreme fatigue. Chills. What the heck?! I looked it all up online tonight and found out that these are all fairly common withdrawal symptoms from Cymbalta. I should have known, given my (and my kids') history with meds. I'm about to go the Tom Cruise route and get all psycho about pharmaceuticals. Tomorrow I get to visit with the lovely nurse who suggested this route toward wellness. I can't wait. She has no idea what she's in for. If I'm in a padded room by the end of the day, please promise to visit and wear a sunny yellow color to cheer me up.

So yeah. After being home for two nights full of night terrors, bathroom visits and incessant sweating, I'm awoken to what looks like a slime attack from a Ghostbusters flick. The devil mommy on one shoulder was oh so close to convincing me to spank them both and send them to bed, as advised in nursery rhymes and by most parents with more than 5 children. But angel-Montessori-loving mommy on the other side balanced her out and the girls ended up with a stern admonishment, a few timeouts throughout the day as required and the threat of eternal timeout and no-playdates-ever-again for Katie should she ever decide to do this again.

Please, please, let the threats work. I need a morning off!!!

Kicking Off the Summer

Summer has barely started, but we've been busy.

Katie's preschool days are officially over, and she graduated near the end of May. I'd be lying if I didn't say that I'm a bit sad... she just seems to be growing up too quickly. Since graduation she's also finished up a season of soccer (and received her first-ever trophy, which she is SOOO proud of), had a ballet recital, stayed a week with her cousins and grandparents, went to a local amusement park with a friend and has still found lots of time to climb the walls and tell me how bored she is. This is week 3 of summer. Here's a few photo updates of our fun...

The Dora-The-Hooker Dress. Here it is. The most hideous children's apparel ever conceived. Notice the black and white polka-dots. Purple, lime green and orange stripes on the skirt, completed with pink tights and ballet slippers. And, you can't see it well here, but there's a round disk pinned to her head that matches. For this costume, we paid $60. Would I do it again? In a heartbeat.

At both her rehearsal and recital I held back tears derived from laughter. The little ones were just so cute, it was almost unbearable. Of course Katie's class had the ugliest dresses ever imagined. The other prima ballerinas had gorgeous, poofy dresses that reminded one of sugarplums, flowers, and childhood dreams of fairy land.

Katie's reminded me of women that I've seen working the streets in Tijiuana.



Dressing Herself. Sadie's all about doing everything herself these days. She picks out her own clothes most days and screams the others when I insist she wear something that is presentable outside of the house.

Here we see her wearing her very FAVORITE thing in the world - the Gap Rainbow Jacket. The Gap Rainbow Jacket is worn even on 100 degree days with humitures over 110. I don't fight it. I figure she'll take it off if she gets hot enough.

Her other favorites are also in use in this photo. Notice the poofy, flowery skirt. It has matching knickers that she loves to show anyone who wants to see them. And the black, shiny shoes with rhinestones. This girl loves the bling.

She is very particular about her clothing, and once she chooses a favorite, I have to be sure to wash it at least twice weekly... she won't go anywhere without it.


Popsicles and the Pool. Jason's only request for Father's Day was that we spent the day together relaxing. We had planned a trip to the amusement park, but skipped out when it got too hot outside. Instead, our entire family enjoyed a great day outside. The girls lounged in the pool, sucking on popsicles, until they decided to get rowdy and drench mommy and daddy with the water that is now no longer in the pool. It was a nice relaxing day - one we rarely share together, with all four of us just enjoying the outdoors and each other's company. I hope for many more days like this this summer!

To SAHM or Not to SAHM

That is the question. When I became pregnant with Katie, I was working at a hospice in the Roanoke Valley. I commuted, on average, 45 minutes each way, so was gone from home approximately 11 hours a day. I knew that once Katie came, I did not want to be gone those long hours from my little one. Yet I knew I needed income. And I needed mental stimulation. Thankfully, the perfect solution came along, I landed a client, started a business and was up and running two months after giving birth to Katie with my ongoing career in nonprofit management. I had a good setup - I worked from home, could flex my hours anyway I chose (within reason) to coordinate with her schedule, had college kids watch her and went to school full time. I even bartended on the side for a few months to make ends meet.

When we relocated, I took the business with me. I was determined to add another full-time client so that I could add the support staff I needed. I enrolled Katie in preschool part-time, which gave me just enough time to work in the morning, plus an hour or two while she slept in the afternoon and a few late-night hours. My day was work and childcare, and I didn't know many people in our area, so began to feel very isolated and alone. I wondered if I'd made the right choice. That said, Katie was blossoming, and I'm thankful I stayed with the business. My client was doing well, which was also satisfying for me.

Two months before Sadie's impending arrival, I took on a new client. The client was in a lot of trouble, and I knew it would be a rough transitional period. I hoped to have the files in place, history reviewed, finances up to code and standards and the office in good order before I left. I hired an assistant, who caught on quickly and felt confident it would be OK. I may even be able to take a week or two off work with the baby came. Then all hell broke loose.

The week before Sadie's arrival, my new client was having some major issues. My older client was in the process of obtaining an international contract and revitalization. The timing of these major events couldn't be worse. Then Sadie arrived with unexpected complications. Luckily, I had her on Labor Day, so I was off work, as was Jason. She was diagnosed with her heart defect that night, and the following day I was at UVA with her, miles from home. Unfortunately, she was a week early, and I had a major meeting that day. So I conducted it while standing outside of the hospital. I worked that night once her stats stabilized. I worked almost every day in that hospital.

When we got home, I continued to work, through the sleepless nights of withdrawal, through the days of ceaseless crying. I had thought she'd nap twice a day or so, so that I could use the downtime to work, and then work in the evenings when the kids went to bed. We all know how that turned out. I began to think that working from home was a terrible choice. Months went by, without a break until almost one year after I had her, when I took a week off and only checked email once a day. As a small business owner, and executive director of one international and one national group, there's no such thing as unplugging.

Now I find myself in a dilemma. I'm not looking for outside work - I enjoy being able to spend some time with the kids, but also work. The problem is I have little to no time outside of work and children. I'm suffocating in the confines of our home. And, I feel like I have less quality time with the children than ever. My time with them during the days is spent driving, eating, running errands. We rarely have the opportunity to sit and play until the evening. I feel like a bad mom, and guilty that I can't spend more time with them. At the same time, I feel like a failure as a business professional because I'm hitting a major burnout and am ready for change. I'd love to take a year or so off and just be a stay at home mom (SAHM), but I can't... the series of financial misfortunes we've suffered since Sadie's arrival have taken their toll on our budget flexibility.

So, I've kind of been watching for something outside the home. Not really actively looking, just watching. I don't want to give up things like taking Katie to her first day of school, afternoon gossip about what happened on the playground, random tickle fights with Sadie when I run in from the office to use the restroom during the day. But at the same time I feel like a shadow of myself, a flower that doesn't get enough sun, one of those kind of analogies. I miss the adult world, the mental stimulation of face-to-face interaction with colleagues on a daily basis. We do play dates from time to time, but I find that I have less and less time for them as the demands of my job seem to increase monthly. In a nutshell, I'm at a breaking point.

Today I came across MY job. That dream job I've been thinking of for months now. The new direction I want to take my career in. And it's only minutes from my home. I'm considering applying, but I'm torn... could I still be there for my kids as much as I am now? Would it be more or less time with them? More importantly, would the time we spend together have more or less quality to it? Do I want to really change my life this drastically? Then there's the company the job is with... there are some ethical issues they have, yet this job would be, in part, rectifying some of the problems (it's a corporate social responsibility position). What to do? What to do?

This post is way too long... I'm just wondering from my online friends out there, what do you think? I guess I can always apply... there's a good possibility I might not even get a call back on it. But if I did, would I want it? Could I be a good mom when working outside the home? I know many moms do it, but could I? Would the kids suffer? I just don't know... but I do know it's time to start looking for a change in my life. I'm wilting and my roots are dry.

Recently heard...

Katie's at that age where her reasoning, expanding vocabulary and innocent insight combine in a lethal combination of comedic quips. Here are a few heard just this past week:

Katie asked me earlier this week why girls just have the "short thingies" instead of penises, like boys have. I told her because that's how we're made. She replied that it would be so much easier if we had them, so that we could pee on trees like boys do. She then asked if boys have the "third hole." No, I tell her, boys don't have a vagina. Later I hear her telling Sadie "You have a 'banina' like me because you're a girl. You don't have a penis." Ah, great. Can't wait till my 20 month old starts running through the house talking about penises.

She loves to personalize Old MacDonald with family in it. For Jason, it's "with a poot, poot here," with me it's "and drama, drama there" and Sadie is "everywhere a scream, scream." Tells you quite a bit about our daily lives.

Katie: You know Carlee has a boyfriend now?
Me: No, really? Who is it?
Katie: It's Jacob.
Me: Oh wow, that's big news!
Katie: Yeah, but she's already tired of going with him. She's breaking up with him tomorrow, but she's too scared, so I'm going to do it for her.
Me: How will you do that?
Katie: Duh, I'll chase him when we're playing wolves, catch him and tell him it's over with him and Carlee and that he needs to move on.
Me: Sounds like a good plan. But try to be nice about it Katie. He may have his feelings hurt.
Katie: No, Mom, he's used to it. All his girlfriends break up with him that way.

Tonight, while playing animals I said something to amuse her. A few minutes later she told me that her brain was still laughing inside her head.

Justice is Finally Served

On October 16, 2003, Jason's cousin, Taylor Blanton (a Virginia state policeman), was murdered in his home. Three days later, we attended what was one of the saddest and strangest funerals ever imagined. Hundreds filled the building for Taylor's eulogy, packing several rooms.

What was so bizarre about the funeral was watching the murderer, there in attendance. Hugging OUR family. Most of our family suspected who it was, but hadn't had the heart to confront Taylor's dad, Jason's uncle Ray. In fact, Ray and his wife were watching the dog for Donna, Taylor's wife and his murderer, at the time. I shuddered as she was carried past me when she "collapsed" outside of the funeral, and my brother-in-law, who is a firefighter and "in the know" about her pending charges, nudged me and told me to "watch the show."

The procession continued to the graveyard, where many in Jason's family lie. Only a short month before Taylor had been a pallbearer for Jason's brother's funeral, in the same cemetery. The irony was not lost on us. Though I didn't know Taylor any more than a casual acquaintance, I could not hold back the tears as I watched his mother and father, his children and Donna kids in front of the grave. I will never forget was when the police presented the American flag - not to Donna, who stood expecting it - but to Taylor's mother. I knew then that the police had confirmed that she was the murderer.

In the days that followed, we heard the hideous details of Donna's plan for murder, from staging a break in two days before, to a note left on the porch. She even said that Taylor had been shot while she'd been in the shower that morning, preparing to have sex with him, and that she came out when shots were fired, saw Taylor's gun lying on the floor, and fired shots at the fleeing intruder. We held our breaths and hoped that there was enough evidence to nab her.

Four days later Donna was arrested. She finally was convicted in 2005 to 28 years. Our family was appalled and sickened at the light sentence. Then came another blow - she won an appeal based upon the media coverage of the incident in the local area she was tried in, and got a retrial. That trial has been taking place for the last few weeks in Virginia Beach.

This past week, the jurors heard testimonies from two Taylor's kids and Donna's OWN children. (I have the highest respect for those four kids!!) They heard about Donna's web of lies, saw physical evidence and heard the investigator's reports.

Today, the jury recommended life in prison. Finally, a bit of conciliation.

Rest in peace, Taylor. Justice is finally served.

7 For 7: How CHD Changed My Life

Before I go into the 7 for 7 for today, please keep up prayers, positive energy, or whatever you can muster for baby Claire, who was sent to the hospital earlier this week with what they thought was RSV. It turns out that it's not RSV, it's much more serious, and she's having a very tough time right now. Please think of their family tonight!!

I can't believe I just posted this on the "public" blog, but I did. After talking to lots of moms all over the country in the last year, I've found out that I'm not alone. In fact, I found out that I'm not unique at all in these 7 things - they are the norm when it comes to coping with a life-threatening illness with your child.

1. Realizing What a Gift Life Is. The miracle of life is more poignant than ever before. As an emotionally-reserved kind of person, I'm amazed at the overwhelming emotions I have when it comes to babies. I cry in part out of joy, in part out of longing for those moments that were lost with my daughter, part in sadness over the babies I know that were lost, and mostly over the miracle that I see. Life, simply, has so much more meaning to me.
   
2. My "Uninsurable" One. I've unfortunately learned the hard way what the real status of health care in America is, and it infuriates, sickens and saddens me simultaneously. When Sadie was first born and crisis hit, we were left with several six-digit "balance" billings that took over 213 hours to get down to manageable sums. Sadie has now been deemed "uninsurable" by every health insurance provider in Virginia. We're hoping she can get medicaid since everyone has denied her, despite the fact that we make too much to qualify according to state laws (ironically, we'd be much better off insurance-wise if we were on welfare at the moment).
   
3. Learning to Let it Be. With Katie, I spent hours upon hours in instructive play, devouring educational theory and incorporating it into every day life. When Sadie came along and had a "defect," I was even more determined to do the same to keep her at or ahead of the milestone charts. Instead, Sadie has taught me to step back and enjoy her milestones as she reaches them at her own pace. Her unique personality and the obstacles she's overcome have made me stop and relax and enjoy those moments of play for the sake of play, snuggling without talking, and letting the house go to hell in a handbasket while we chase each other in circles.
4. Financial Challenges. I have avoided this post like the plague, but after talking to families of all "status" levels with CHD kids, I feel like I can now share this. Frankly, have felt ashamed at the toll the entire experience has taken upon our family's finances. Like I should have somehow been prepared, or been able to avoid the impact it's had. The co-insurance costs, counter billing, medication, doctor and specialist co-pays, loss of income from extra time off of work, extra child care... the list goes on and on. It's incredibly hard to put myself out there and admit that it's taken a huge toll on our finances. That being said we are lucky - we've taken a hit, but we're surviving. I've met other families have lost everything they own in their fight for their child's life. It's enough to make me run to Canada and wave the socialist flag.
   
5. Learning How Tough Marriage Can Be. I can't even begin to describe to you what it's been like for Jason and I this past year. Some of you know about it, some of you don't, but let's suffice it to say we've definitely had our ups and downs in our 12 years of marriage. But nothing can put a strain on a relationship like having a child in critical condition. You feel closer, yet more alienated from eachother. Your full attention goes to your child's survival (and, in our case, in worrying about the impact on Katie as well), and you lose a lot of yourself and almost all of your relationship in it. Having a partner beside you going through the same thing, but with differing ways of handling things (because none of us are truly alike in how we deal with stress and grief!) is both wonderful and incredibly hard.
   
6. Smiling at Tantrums. I used to roll my eyes at parents in stores that had tantruming children, thinking how my child would never behave that way thanks to my parenting prowess. Someone upstairs wanted to take me off my high-horse, and did so with my second child, who has CHD. As I've mentioned once or twice, Sadie has some insanely intense tantrums, which worry me (developmentally) but also reassure me. I'm thankful her heart is strong enough to support them. I'm thankful I get to hear her voice. Most of all, I am thankful for her life. Now I'm the one being glared at, and though I'm embarrassed and ready to run from the store, I can always find a smile at the know-it-all, because he or she has no idea that this screaming banshee in my grocery cart is the ultimate survivor.
7. A New Perspective. My friend Christy, mom to Sydney (see the 7 faces entry 2 days earlier), wrote, "Having a child with CHD had totally changed my prespective in life. I do not sweat the small stuff like I used to. I have learned to cherish the moments with my children. For the smiles...drools....tears....temper tantrums....arguments....laughs....for their strength....courage.... and most of all, for how much they teach me about life and unconditional love." Well said, Christy, and ditto to that!!

The New Year

Well, we're already half-way through the first month of the new year, and I'm finally finding a moment to sit down for an update. This year is going to be a good one, I just feel it. Even if it's not great, it has to be better than last year! I've never been so happy to leave a year behind in my life. It was stressful on all fronts - work, kids, house, relationships...

So, this year I'm actually making a few resolutions to ensure it's a better one. I started out with only two, but as the year opened up, I found a few more I want to add. Here's what I've got:

1. I'm not going to take the backseat in my life anymore. Don't get me wrong... I will always help others when I can, but not at the expense of my emotional health, nor my family's. Last year I tiptoed around quite a bit, not wanting to hurt anyone and bending over backwards to accommodate what I thought others wanted of/from me. This applied to a variety of aspects of my life both personally and professionally. So, this is the year of taking the reigns back, which leads me to,
2. I will make more time for fun. With the kids, with the husband, on my own. Life is too short not to be having more fun! This means expanding my social network that shrunk so much over the past two years, getting to the theater more often, trying new things, having more girls nights out, etc.
3. I'll learn how to take care of myself again. Since I work from home, I rarely put on makeup, "do" my hair, etc. Because of child and work obligations, I forgot how to take time and take a bath, go for a walk by myself, shut myself in my bedroom and read a book without interruption, enjoy a moment of silence. I'll start MAKING time to go to the gym (already have started to return to that routine), even if it means missing an hour with the kids, the husband or the pets.
   
4. And then there's the ever-present (it seems in my life) need to lose some weight. Yeah, yeah, that too. It fits into #3, but needs to be broken out so I can see it in writing. Time to get back to pre-baby weight again. I can and will fight the battle of finding an elliptical at the gym in January (amongst the hoards of other resolution-makers) and will stick with it through the end of the year when the gym once again echoes and I have my choice of machinary.

That's the lowdown on the soon-to-be new-improved Kim. More backbone, less fat, more fun. Sounds good to me. Plus we have some fun stuff planned. I'm heading to Boston in February for the Consumer Trends Forum (shameless plug for my client organization... it will be a GREAT meeting packed with lots of insight into current consumer trends), to Hatteras in May with a group of friends to try out scuba diving in frigid waters (if we can get our certification in time), to one of my fav cities in the US - New Orleans - in June for some Cajun cookin' and microwave science (again, client meeting) and then to the big one... Lake Biwa, Japan for an international microwave science congress. I can't wait to go. Jason will be coming with, and we are saving and planning now to make it the trip of a lifetime. It will be his first trip out of North America!

Happy (belated) New Year!

It's broken...

You can say that about every big ticket item we own almost. This quarter has resulted in record spending in our household, and NOT for Christmas gifting. The death toll includes:
- Over the range microwave
- Oven
- Dishwasher
- Refridgerator
- MacBook screen
- Central heater for office
- Jason's computer (HP)
- Retaining wall in front of our house

Just when I thought we were done with things giving out on us, the battery died on the truck two days ago. No biggie - my sister got it switched out and it ran again. For about 24 hours. Then as I was driving to one of Katie's friends houses yesterday, it died again. We jumped it, got back on the road and less than a half mile away, the lights started flashings, strange beeps followed, the steering went out (which is a BIG deal with an Expedition), then the brakes. Luckily we were on a dirt road and I managed not to lose control and got off to the side of the road. Diagnosis? One alternator. Sweet. My mechanic brother-in-law advised that this is the beginning of the end for the 10-year old truck I love.

I called a tow truck, mom came and rescued us from the side of the road and we got home safe and sound. The tow truck driver informed me that this was the beginning of the end of the truck. Thank you. So I've heard. I came inside, warmed some leftovers and sat down at our brand-new dining set to feed Sadie... and the chair leg split down the middle.

Sadie, of course, thought it was hilarious. "BowKin" "BowKin" she keeps telling me this morning, pointing at the chair laying on its side in its carnage. Then she laughs. Yeah, kid. HILARIOUS.

What I really meant to say...

So after the ranting and raving of my last few blogs, I'm taken aback that I didn't take the time to say what I truly have wanted to say... what I planned to post for the past year.

The past year has been an amazing one - with life, death, love and "war" all twisted into our daily routines. It's been tough for all of us, yet rewarding. All four of us have some personal battle wounds that we need to heal from, and we're finally pulling the pieces of "normal" daily life back together.

What I've learned this past year is how truly blessed I am for every moment I get to share with my children. Though I'm often pathetic at keeping my cool when they demand intense attention for hours on end, I can look into Sadie's eyes, see her scar or (heaven forbid) Katie's tears, and I'm immediately reminded how much worse things could be. I love my girls like there is no tomorrow.

I've also realized this past weekend that I've put my life on hold long enough. I've stopped "living" as I used to, and felt like I've been struggling with each day, just trying to get by and survive, until things could get better. It's funny, but the events of the past weekend were enough to finally jolt me out of the non-action trance I've been in and make me realize that it's time to stop tiptoeing around and start living life the way I want to and in which my family thrives. I've put a lot of time and effort into helping others (which isn't a bad thing usually), but at the expense of my family's time and my welfare. So it's time to change that a bit. No, I'm not going to go overboard and become a selfish, hoarding fool. But I am going to put my family and my needs first once again.

The other overwhelming thing I've realized is that, despite the isolation I felt this past year as Sadie recovered, I have an amazingly strong network of friends and family who have been there for me through it all. I was often tearing up this weekend as I recalled the things that different friends have done to make life easier for my family, me and especially for the girls. To see such a large group of them come together to sing "happy birthday" to our little girl was a memory I'll treasure the rest of my life.

I've finally begun to start the thank you notes I never could write last year. I wrote to her surgeon, whose expertise saved her life. I wrote to the ambulance driver, who held my hand and teared up with me when I told him to take good care of her on that first scary night... then promised she'd get there safe and sound. I left a note for the nurse at the hospital who held me up in the bathroom that night as I sobbed after Sadie was taken from me, as I the enormity of the situation finally hit me. But I haven't been able to really express my thanks to my friends - yes, I sent thank you notes, but they just don't do it. This weekend's "bash" was when I planned to talk to many and express just how much their calls, prayers, well-wishes, food, hugs and support have meant to me this year. I could not have made it through without them.

And to you out there, who still reads my blogs despite their dark air lately, thank you for your thoughts and support too. I love getting notes from the "lurkers" out there who have followed our family's story; or hearing from a friend that they're keeping tabs on us through the blog from thousands of miles away. It's great.

What I really wanted to say is THANKS!!