I haven't been posting as much lately, and it's great to say that I really don't have too much to report for a change!
This week was chock full of doctors appointments for the girls. Sadie had to have a few shots on Monday. They give her a special booster called Synagis (for the bargain price of $100/shot AFTER insurance) every month to help protect her from RSV (a respiratory virus). Plus she had to update her HepB shots, since we were behind due to her prolonged hospital stay. And a blood screening was done since the one that was done in the hospital was invalid because she'd recently received a transfusion. So she was pretty cranky the following day, but is now up-to-date and where she should be for an almost 3-month old. Yay!
Katie had to do a VCUG and sonagram this week to make sure that her recent urinary tract infections weren't due to reflux of the urine, problems with her kidneys, etc. The tests were awful and she was scared to death. They had to do a catheter in, fill her bladder through the catheter with barium and watch it go in and out a couple of times. She's got a serious phobia of hospitals (gee, I wonder why?!) and was shaking like a leaf, but was brave and did very well. I do NOT want to have to watch my girls cry though any more tests. I know they're necessary, but there's been way too many of them, and I'm getting weaker emotionally with each one. It was everything in me not to cry when Katie was looking at me screaming as they put the catheter in. Poor baby. Thankfully everything looks good, so we're in the clear on that one. It was nice to get positive test results for a change.
Thursday was Sadie's cardiologist appointment, and they did an echocardiogram to make sure the anatomy of the heart and blood flow are working ok. The cardiologist (Dr. Albrecht) was wonderful, and Sadie was a perfect angel during the exam. She now weighs 11 lbs 2 ozs, which puts her in the 10th percentile, so they're a little worried about her weight and growth (she's 22.5 inches), but not so much so that anything needs to be done. The cardiologist is following up with Sadie's GI, though, because he wants further follow up regarding the lower esophageal slow motility problem at a sooner date than she had thought was necessary. So we'll see what happens there. She's on Prilosec, and it seems to have helped a lot with the spitup and crankiness, and I've been avoiding all dairy products, which also helps. So I'm not sure why the weight isn't going on as fast as it was last month.
The best news of all is that Sadie has now successfully completed her methadone wean! We took her off last Saturday, and she's made it all week long with very few withdrawal signs. Day 3 was kind of tough, but nothing we hadn't seen before - just a lot of crying, cold sweats, stuff like that. We've got a whole new baby on our hands - she's becoming so much more alert, even tempered (well, as even as I think she'll get - some of this is just personality) and so darn cute I can't stand it. I'll try to post new pictures later this weekend!
Saturday, December 02, 2006
Our first really good week!
Labels: CHD, Methadone, Sadie, TGA, Withdrawals
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